Advocacy

NJ Epilepsy Task Force Public Hearings

The New Jersey Epilepsy Task Force will be making recommendations to the Governor to create awareness, eliminate discrimination and better address the needs of those with epilepsy within the State of New Jersey. Anyone with personal experience with epilepsy or an interest in better serving those affected by epilepsy is encouraged to give input and present testimony at a series of public hearings to be held at various locations throughout the state (see below).

  • Wed
    27
    Aug
    2014

    NJ Epilepsy Task Force Public Hearing

    6:30 PM - 8:30 PMMercer County Public Library, West Windsor Branch

    Mercer County Public Library, West Windsor Branch
    333 North Post Road
    Princeton Junction, NJ 08550

    More information

There will be an additional hearing scheduled at the Millburn Public Library in September. Exact date TBD.

More information concerning the Task Force can be found here. If you are unable to attend one of the public hearings below, you may also submit your testimony via mail or online. See flyer for details. If you would like to attend or present your testimony in person, please call Ms. Diane DiGiovacchino no later than 5 business days before each scheduled hearing at 609-984-0755 to register.


Ways you can help bring awareness to our mission

  • Share relevant posts on your blog or social profile. Connect with us on Facebook, Twitter, LinkedIn or Pinterest to become a resource for your network of family and friends affected by epilepsy.
  • Write a letter to the editor of your local paper. Share your story, or the story of a loved one, to bring greater awareness to the community that you reside.

Legislative News

  • Governor Christie has signed a bill easing medical marijuana restrictions for children. The issue arose when several children with Dravet’s Syndrome could not participate in NJ’s program due to rules.
  • S2227 requiring medical examiner training on Sudden Unexpected Death in Epilepsy (SUDEP) has been signed by Gov. Christie. NJ is the first state to pass such legislation which also requests medical information and brain donation for research. Thank you to all the advocates who worked for this law.
  • Governor Christie signed into law S2353 extending the term of the NJ Epilepsy Task Force by one year and adding an additional member from the NJ Association of School Nurses.